I was recently sitting in the waiting room of Dr.D's office waiting to get my final Lupron injection. I walked in actually kind of excited. It was my last injection and there was starting to be light at the end of my side-effect tunnel.
It was late in the day, but the waiting room was fairly full. There was a couple sitting right across from me having a conversation. I was mostly engrossed in reading work emails on my phone. Work has been CRAZY and I have officially turned into my father - reading and answering work emails on my phone at all times of the day. Anyway..... I was really trying not to listen to their conversation, but it caught my attention and I found myself listening. And then I was angry. The husband was telling his wife about someone he works with who was getting ready to go through additional rounds of infertility treatments after multiple failures. The wife, who is visibly pregnant, looked at him and said she just did not understand why people put themselves through infertility treatment. That if something wasn't meant to be it just wasn't meant to be and they shouldn't force it. She thought it was crazy they would put themselves through "that".
My reaction was immediate anger. My heart started beating fast and I was mad. I really wanted to talk to her. To explain to her my situation, what my husband and I have been through and why the desire to go through what her husband's co-worker was getting ready to go through is so strong. I wanted to give her my perspective. But my rational mind took over and I decided confronting her in the OBGYN's office waiting room was not a good move.
Then my emails were no longer interesting to me. All I could think about was what she said. My mind wandered to our journey and our story and then I started to battle my emotions.
Out of no where I was fighting tears. Just like that. No warning. Tears.
And it took everything I had to keep from crying. All of my energy. I had to pull it together. I was in the doctor's office waiting room by myself. The tears would have to wait.
I did keep it together and a few minutes later was called back for my injection. Less than 5 minutes later I was out of the door. Away from that waiting room and headed to where I could cry. I was also grateful I didn't run into Dr. D or his nurse as that definitely would have brought the tears I was fighting.
Something I saw recently said, "Do not confuse my bad days as a sign of weakness, those are actually the days I am fighting my hardest."
Triggers are a real thing. I generally try to avoid the things I know bother me. But it is impossible to avoid all triggers all of the time. Sometimes they literally come out of nowhere and completely change my mood. When I walked into the waiting room I was excited and happy. When I left, probably less than 20 minutes after I walked in, I was fighting major tears and could not get out of there fast enough. And despite my best efforts to pull it together, when I got home my husband knew something was wrong.
Perspective is also important. I strongly believe everyone is entitled to his or her opinion. However, I also strongly believe it is critical to understand that others have different opinions and perspectives. And maybe, it might be a better idea to just be a little more supportive and a little less critical.
Be kind, for everyone you meet is fighting a hard battle.
Thursday, December 29, 2016
Now you know the story to date. The story of our four pregnancy losses. The story of all we have been through in the last four years.
So where are we now?
In April of this year I was diagnosed with an ovarian cyst. An endometrioma to be exact. No big deal. I would feel a ton better after it was removed and we would move on.
Surgery was scheduled for mid-June. In the time between the discovery of my cyst and my surgery date I, of course, ran through every scenario I could think of. The main scenario I feared was my ovary would have to be removed with the cyst. My left ovary. The only one that had a Fallopian tube. Any other scenario I played out in my head was not as scary or journey- changing as the one where my ovary had to come out too. So I tried not to think about it too much and waited for mid-June.
Then it was time and I was more nervous that I probably let on. Let's be honest, I was scared. I was terrified of waking up and my husband having to tell me my ovary was gone.
When I woke up from surgery, what he told me was almost worse. And not what I expected at all.
I have severe endometriosis. SEVERE.
It is everywhere. It is a mess. And they can't really clean it up.
My uterus is attached to my intestinal tract.
Dr. W did my surgery. He operated on me with Dr. D when my uterus ruptured a year before. He is an exceptionally skilled GYN surgeon. He cleaned up what he could. But he couldn't clean all of it up. And he couldn't detach my uterus from my intestines. That would take the assistance of a different surgeon and they didn't want to do that to me that day.
When I woke up I was told I will have to have a hysterectomy sooner than later. I was told there was no way we would be able to get pregnant on our own. I was told IVF is our only option. I was told the cyst was removed very easily and my ovary was still there. Well, at least that part was good news!
It took a while for me to digest all of this. Several days later I was still processing it all.
No one expected to find the severity of endometriosis that Dr. W found. And it changed a lot.
Two weeks later I started a six month course of Lupron. Lupron is a drug that basically has put me into a temporary monopausal state. It lowers the estrogen in my system so the endometriosis has nothing to feed off of and everything has a chance to rest and heal.
Lupron is no fun. When I started writing this post I was three injection in. I get an injection every four weeks. And I have the fantastic side effects that come along with it.
I have hot flashes (which are not that terrible, but definitely come out of no where and always at the most unexpected times).
I have night sweats (I am am amazing sleeper, I can sleep through anything - except feeling like a furnace and dripping in sweat at 2am. No fun.) Luckily this doesn't happen very often!
I have mood swings. Or more accurately I have no filter. Especially when I am mad or frustrated at someone or something. My husband takes the brunt of most of my lack of filter. I apologize to him daily for getting frustrated with him over things that he probably didn't even do. Poor guy.
And I am exhausted. I wake up 6 out of 7 mornings a week feeling like I haven't even slept. My body hurts I am so tired. Most days I get to work and feel overwhelmed my the day ahead of me and sometimes wonder how I am going to make it through the day. I always do. But I am always ready for bed at the end of it. I told my husband the other day I feel more tired that I ever did during the first trimester of any of my pregnancies. And let me tell you, my first trimesters were bad. I would fall asleep on the couch at 7:30 in the evening. Lupron makes me more tired than that.
I am toughing it out. It's only temporary. But I am looking forward to the week of Thanksgiving when I will get my last injection.
The comes the hard decision. IVF is our only option if we want to have another baby. The chances of us getting pregnant on our own is virtually zero. We have to decide if that is what we want to do. It's a hard decision.